KUED Examines End-of-Life Care in Utah
By Joey Marquart
Relief, comfort and control. These are the gifts provided by hospice
workers across the nation to over 500,000 terminally ill patients each
year.
The Journey Home: Stories from Hospice examines this service through
the intimate, candid stories of five Utah hospice patients and their families
as they embark on their final journey, with the compassionate help of
local hospice workers. Their stories are unique - yet universal.
At a time when medical technology is extending our lives - and making
our deaths more lonely, frightening and sterile - hospice steps in to
offer a more meaningful way to die, surrounded by loved ones in a familiar
environment. Primarily based in the privacy of the patient's home, hospice
offers comfort-oriented care when there is no hope for a cure. The Journey
Home examines this medical model, presenting five patients who have taken
control over where and how they will die.
"I feel in many ways like a ghost," hospice patient Cary Jones
tells viewers during the film. "I'm walking around with the knowledge
that most people have the luxury of living without
the knowledge
that I could be dead in three days from now." Through striking personal
interviews and in-depth footage of the team approach to physical, emotional
and spiritual care, The Journey Home weaves the stories of doctors, nurses,
social workers and family members to present a sensitive landscape of
living with dying, and dying with dignity.
Hard to define in words, the delicate role of hospice becomes clear through
the experiences of five families on the same, final journey. Cary Jones,
an eloquent mother, wife and artist, gives voice to the spiritual and
emotional journey she's made as she faces the end of her life with grace
and beauty. Joe Torman, an elderly outdoors enthusiast, still maintains
his independence despite his liver disease diagnosis. Steve Warren, a
hospice doctor, experiences hospice on a personal level as he watches
his mother deteriorate in the final stages of multiple sclerosis. Jeanette
Rydalch, a caregiver on the brink of burnout, struggles with the emotional
difficulties - and financial strains - brought on by her husband's untreatable
brain tumor. Karen Cook, an ovarian cancer patient with two young children
and a husband, must come to terms with how her illness has affected her
family, and how they will stay together in the face of her uncertain future.
Local services featured in the one-hour program include Utah's Heritage
Hospice and IHC Hospice Care, programs dedicated to helping the terminally
ill pass their remaining days with sympathy and comfort. As part of KUED's
commitment to exploring end-of-life issues at a local level, The Journey
Home paints a touching picture of the decency, caring and courage
Utah hospice workers embody each day as they help patients and families
come to terms with their own mortality. "I feel extraordinarily privileged
to experience the radiant beauty of most dying people," says Nancy
Telos, the tender chaplain who helps patients and their families sort
through the philosophical conflicts of death and dying. "Most of
them cut to the chase. They know what matters, and that's what they want
to focus on. It's an honor to me to help them do that."
"In shooting The Journey Home, I was curious about how hospice
workers were able to support people at a time when hope for a cure is
gone, and death is the only thing that is certain," says KUED Producer
Nancy Green. There is nothing more profound, she maintains, than being
with somebody as they make the transition between life and death. Green
courageously portrays that transition in The Journey Home.
The Journey Home: Stories From Hospice is distributed nationally by American
Public Television (APT). Located in Boston, APT is a major source of programming
for the nation's public television stations. Known for identifying innovative
programs and developing creative distribution techniques, APT provides
stations with program choices that enable them to strengthen and customize
their schedules. It also serves as an essential distribution option for
producers. More information about APT's programs and services is available
at www.aptvs.org.
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