Helpful Hospice Links

The following organizations have useful resources and additional information about hospice care, palliative care and other end-of-life care:

American Academy of Hospice and Palliative Medicine (AAHPM)
www.aahpm.org
The AAHPM Web site is designed for healthcare professionals active in hospice and palliative care, and includes information on related conferences, publications, and news.

The American Hospice Foundation
http://www.americanhospice.org/
The American Hospice Foundation provides training and education programs in the workplace, in public and private schools, and in the health care system, with the goal of improving services for grieving and dying Americans of all ages.

Children's Hospice International
http://www.chionline.org/
In 1983, Children's Hospice International (CHI) was founded as a non-profit organization to provide a network of support and care for children with life-threatening conditions and their families.

Hospice Cares
http://hospice-cares.com/
Hospice Cares is dedicated to providing resources for care providers, patients and families.

Hospice Foundation of America
http://www.hospicefoundation.org/
This non-profit organization provides leadership in the development and application of hospice and its philosophy of care through programs of professional development, research, public education and information.

Hospice Net
http://www.hospicenet.org/index.html
This Web site provides resources for patients and families facing life-threatening illness.

Hospice and Palliative Nurses Association
http://www.hpna.org/
The purpose of the HNPA is to exchange information, experiences, and ideas; to promote understanding of the specialties of hospice and palliative nursing; and to study and promote hospice and palliative nursing research

The International Association for Hospice and Palliative Care (IAHPC)
www.hospicecare.com
This Web site provides information on hospice and palliative care both in the U.S. and abroad, and contains cross-cultural studies of care practices as well as links to forums and publications.

Last Acts
http://www.hpna.org/
Last Acts is a call-to-action campaign dedicated to improving end-of-life care through sharing of ideas and solutions by professional care givers, institutions and individuals.

Lighthouse Hospice
http://www.lighthousehospice.biz/
Lighthouse Hospice is committed to providing comfort, compassion and a holistic approach to end of life care. It is our priority to treat our staff with respect, which we want them to pass on to the patients and families. We want our patients and families to know that their needs come first.

National Association for Home Care
www.nahc.org
Resource Web site representing hospices and home care organizations. Good for statistics, legislation, research and legal information for the elderly and disabled who require healthcare services.

National Association of Professional Geriatric Care Managers
www.caremanager.org
This site offers information on care manager services and a directory of qualified care managers who can help patients and families find counseling and care services.

National Family Caregivers Association
www.nfcacares.org
National non-profit organization that provides information and education for caregivers.

National Hospice and Palliative Care Organization
http://www.nhpco.org/
This organization was created in 1992 to broaden America's understanding of hospice through research and education.

National Prison Hospice Association
http://www.npha.org/
The National Prison Hospice Association exists to promote hospice care for terminally ill inmates and those facing the prospect of dying in prison. Our goal is to support and assist corrections professionals in their continuing efforts to develop high quality patient care procedures and management programs. We hope to build a network for the exchange of information between corrections facilities and hospices about existing and projected programs.

Partnership to Improve End-of-Life Care
http://www.carefordying.org/
This coalition of volunteers--both individuals and organizations--are interested in combining their efforts and expertise to plan and implement changes to improve care for persons near the end of life and their families.

Project on Death in America
http://www.soros.org/death.html
The goal of the Project on Death in America is to understand and transform the forces that have created and now sustain the current culture of dying. To this end, the project supports epidemiological, ethnographic, and historical research and other programs that illuminate the social and medical contexts of dying and grieving.