End-of-Life Web sites

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AgeNet, LLC
www.agenet.com/
AgeNet is a user-friendly Web site for older adults and their caregivers presented in a newsletter format. Along with the information it provides, the Web site gives you the opportunity to ask health professionals (including a pharmacist and an occupational therapist) questions. One of the most notable features is a section containing reviews of drugs for health problems ranging from Alzheimer's Disease to stroke.

Aging with Dignity
www.agingwithdignity.org/
Aging with Dignity is an organization that advocates for the needs of elderly Americans and their caregivers. The Web site provides an overview of the organization's publications and projects.

The American Institute of Life-Threatening Illnesses
www.lifethreat.org/
The American Institute of Life-Threatening Illnesses is based in the Columbia-Presbyterian Medical Center of New York City. Their Web site provides information on a wide variety of diseases, research, policy initiatives, and quality-of-life issues.

Americans for Better Care of the Dying (ABCD)
www.abcd-caring.org/
The Americans for Better Care of the Dying Web site is dedicated to advocacy for better support and care systems for the seriously ill. It contains news updates, a resource directory and information on events.

Cancer Family Care
www.cancerfamilycare.org/
Founded in 1971, Cancer Family Care has been a pioneer in the greater Cincinnati Community in the areas of providing counseling and support services to cancer patients and their families to help them cope with the devastating impact of cancer.

Cancer Resources
www.cancerfamilycare.org/
CancerResources is an on-line guide to cancer-related information, services and organizations. This is an insider's guide developed by survivors, caregivers,

Cancer Wellness House
www.cancer-wellness.org
Cancer Wellness House is a center where individuals who have cancer and their families receive emotional support and access to various educational resources.

Community-State Partnerships to Improve End-of-Life Care
www.midbio.org/npo-about.htm
Community-State Partnerships to Improve End-of-Life Care is dedicated to advocating for the dying. The Web site is directed towards anyone concerned with end-of-life issues and provides useful information including state resources.

Death: An Inquiry Into Man's Mortal Weakness
http://library.thinkquest.org/16665/cgi-bin/index.cgi
This well-designed Web site for the ThinkQuest Internet challenge is divided into three sections: causes of death, coping with death, and following death. The easy-to-browse format also includes tips for teachers.

Dying Well
www.dyingwell.org/
The Dying Well Web site, created by Dr. Ira Byock, past president of the American Academy of Hospice and Palliative Medicine, contains a wide range of resources on death and life-threatening illness, plus articles by Dr. Byock and information on his books.

The End of Life: Exploring Death in America
www.npr.org/programs/death/
A comprehensive Web site on death in the U.S. for people with life-threatening diseases or those who are terminally ill. The transcripts section includes links for those that wish to listen to or read specific topics and stories relating to death or dying.

End of Life Physician Education Resource Center (EPERC)
www.eperc.mcw.edu
An initiative of the Medical College of Wisconsin and the Robert Wood Johnson Foundation, EPERC provides information to physician educators about end-of-life training materials, publications, and conferences. The Web site requires registration for access.

End-of-Life Nursing Education Consortium (ELNEC)
www.aacn.nche.edu/elnec/about.htm
Robert Wood Johnson Foundation-funded project to educate nurses about End of Life Care. Also contact American Association of Colleges of Nursing: Fran Weed (202) 463-6930

Growth House, Inc. Resource Directory
www.growthhouse.org/
Growth House is a San Francisco-based non-profit organization that offers a broad range of online information on end-of-life care: from hospice handbooks to sites that give tips on explaining death to children.

Health Journeys
www.healthjourneys.com/

Innovations in End-of-Life Care
www.edc.org/lastacts/
International online journal and forum on best practices to improve and manage a dying patient's quality of life and care.

Johns Hopkins AIDS Service
www.hopkins-aids.edu/
Johns Hopkins AIDS Service home page.

Leukemia Society of America
www.journeyofhearts.org/
Information on, and resources related to, leukemia and other cancers.

Long Term Care Today
www.longtermcaretoday.com/
Multidisciplinary Web site for healthcare providers and other professionals who practice in long-term care settings.

Medicaid Information
www.hcfa.gov/medicaid/medicaid.htm
Search Medicaid for explanations of their payment policies for consumers and healthcare professionals.

Medicare Rights Center
www.medicarerights.org/
General information resource center for the Medicare program.

Midwest Bioethics Center
www.midbio.org/
Community-based center which provides an array of educational programs for professionals and laymen dealing with healthcare ethics.

Missoula Demonstration Project
www.missoulademonstration.org/
Web site that studies the impact of the impact of community-based care on the quality of life of patients and their families.

National Coalition for Cancer Survivorship
http://www.cansearch.org/
The National Coalition for Cancer Survivorship (NCCS) is a grassroots network of individuals and organizations working on behalf of people with all types of cancer.

The National Hospice and Palliative Care Organization
www.caringinfo.org
The website www.caringinfo.org provides information on advance directives and a range of publications and services to foster communication about end-of-life decisions. NHPCO also provides community outreach tools and resources for organizations promoting quality end-of-life care through the website LIVEpartners.org.

National Reverse Mortgage Lenders Association (NRMLA)
www.reversemortgage.org/
The Web site for the NRMLA, a national non-profit trade association for companies that originate, service, and invest in reverse mortgages-- a frequent financing option for end-of-life care. Also contains general information on estate planning.

National Viatical Association
www.nationalviatical.org/
The National Viatical Association (NVA) is dedicated to financially assisting and effectively promoting the needs of people coping with terminal illness in a compassionate, professional, and ethical manner.

Philadelphia Online: "Seeking A Good Death"
www.philly.com/packages/end_of_life/
A well-organized and clearly presented Web site with many news articles about Americans' attitudes towards death and dying. The series won a Pulitzer Prize for photography in 1997.

Project on Death in America
www.soros.org./death/index.htm
Project designed to explore and fundamentally change the perception of dying and death through research, education and policy.

Promoting Excellence in End-Of-Life Care
www.endoflifecare.org/
Robert Wood Johnson Foundation national program office overseeing 22 innovative projectives nationwide to improve quality of care for terminally-ill people and their families. Includes project descriptions, resources, newsletter and links.

The HIV Resource Group
www.hivresourcegroup.org/
The mission of HIV/AIDS Resource Group is to maximize all possible medical, psychosocial and educational resources to help persons affected by or at risk of HIV/AIDS.

VA Faculty Leaders Project for Improved Care at the End of Life
www.va.gov/oaa/flp/
Information on the Department of Veterans Affairs program to develop curricula for healthcare professionals working in palliative and end-of-life care.